Links

Here are a few additional sites that may provide information relating to hospice and end-of-life.

Minnesota Network of Hospice & Palliative Care has NOT evaluated, made any determination about quality or efficacy, and does not endorse any information, service, product or company represented by these hyperlinks. The list is not a complete list. Consumers and healthcare professionals should use their own judgments about the quality and necessity of information/products/services available for their own conditions.

End-of-Life
Hospice & Palliative Care Organizations
Articles about Hospice
General Health Care
Pain Management
Grief Support
Hospice Regulations
Legislation
Minnesota Health Organizations

End-of-Life
  • Aging with Dignity – National non-profit organization that promotes human dignity as America ages, with emphasis on improved care for those near the end of life.  Distributes Five Wishes, an easy to use advance directive that over 1 million American families have used to discuss how they want to be treated during times of serious illness.
  • Americans for Better Care of the Dying aims to imporve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs.
  • The Commission on End of Life Care Final Report (01/2002) - The Commission on End of Life Care Final Report was produced by the Minnesota Partnership to Improve End of Life Care in collaboration with the Minnesota Department of Health. Major funding provided by the Robert Wood Johnson Foundation Community-State Partnerships grant.
  • Family Caregiving at Life’s End is a booklet that describes the signs and symptoms of the dying process, categorized by stages from greater than three months life expectancy to the actual time of death, and offers suggestions for the caregiver at each stage. The booklet was created in partnership by the Minnesota Board on Aging and HealthPartners–Hospice of the Lakes.
  • Growth House – Search engine offers access to the net’s most comprehensive collection of reviewed resources for end-of-life care.  Inter-Institutional Collaborating Network on End-of-Life Care (IICN) links health care organizations through a shared network.
  • Caring Connection is a national consumer and community engagement initiative to improve care at the end of life, providing free resources and information.
Hospice & Palliative Care Organizations
Pain Management
  • American Pain Society – is a multidisciplinary educational and scientific organization dedicated to helping people in pain.
Hospice Regulations

Federal

  • CMS – is the official site of the U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services (CMS), which is the Federal agency overseeing the Medicare and Medicaid programs.

State

Legislation
  • Thomas – named after Thomas Jefferson, this site provides links to Congress, White House, and federal agencies.
  • North Star – is a good starting point for the Minnesota Legislature and state agencies.
Minnesota Health Organizations
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